M.E. stands for myalgic encephalopathy. Like all illnesses, be it cancer or heart disease, it comes in various forms from mild to extremely severe. There are approximately 250,000 sufferers in the UK alone, 25% of these suffer with severe M.E, however no two cases are exactly the same.
It is also known by the name Chronic Fatigue Syndrome, however this is not a very good title for the conditions that thwarts sufferers' because it implies a less severe illness than it actually is and does not take into account the many symptoms.
At it's worse, severe M.E has been described by professionals as being a bad as end stage AIDS or cancer, and unfortunately, we still do not have enough research to have a proper treatment for it.
The video, The World of One Room, describes the symptoms in more detail.
Jessica has been suffering with severe M.E since she was just 14 years of age. Now, at 22, Jessica has spent 4 years constantly in hospital, 7 1/2 years completely bedridden, 2 years being fed by an NG tube, whilst facing many dangerous symptoms that can be brought on by severe M.E.
Jessica is fiercely positive of a future beyond M.E and remains incredibly positive, with a passion for life. She founded a new form of painting, which she has named a Laugh - O - Gram, that have been exhibited. She also founded her charity called Share a Star in October 2010.
Jessica believes that education and awareness are the key in the battle with Severe M.E and last year she created a video called The World of One Room, in memory of a friend who died, Emily Collingridge. She has created a campaign called the One Room Campaign, which is a short presentation that can be played at schools and work places.
Get an information pack about the One Room Campaign. Ideal for Schools, Colleges, Churches, etc.
Share a Star is a young charity, run by Jessica from her bed. It revolves around a message of hope and helping seriously unwell children and teenagers under the age of 21.
We make each child a special unique holding star, and create special moments through gifts for youngsters fighting for their lives.
She first decided to start Share a Star, when she was in a hospital, in agony and the star on the ceiling was the only thing she kept looking at, as it sparkled with light.